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Conferences

Within the framework of its scientific work, MDA Hellas organizes medical conferences and speeches on neuromuscular diseases, the aim of which is:

  • To create dialogue, exchange and dissemination of new information and data on the scientific, clinical and psychosocial dimension of neuromuscular diseases
  • To promote collaboration among various actors who are directly or indirectly involved in improving the lives of people suffering from neuromuscular diseases
  • To contribute to the education and empowerment of the human potential dealing with neuromuscular diseases
  • to contribute to the development of effective activities for the therapeutic approach to neuromuscular diseases

 

Training for Physiotherapists

As part of the training of health professionals, MDA Hellas, in collaboration with the Parent Group of Duchenne Muscular Dystrophy (DMD), organized a week devoted to a primary issue for children who are members of the Duchenne Muscular Dystrophy Association: physiotherapy. The leader of this project was Marion Main, Leading Consultant Physiotherapist at Great Ormond Street Hospital for Children in London, whose 28 years of experience treating children with Duchenne Muscular Dystrophy is invaluable.

 

The training for the physiotherapists and other professionals, such as occupational therapists and hydrotherapists, and the clinical evaluation of the Association’s members, as well as parent training, were held under Marion Main’s guidance and with her invaluable contribution. Altogether, more than 25 professionals and more than 30 families were trained in physiotherapy exercises focussed on this particular disease.

The training and the clinical assessments were carried out at the NMD Special Unit at the Agia Sofia Children’s Hospital and at the MDA Hellas House.

Our supporter for this training programme was AEGEAN AIRLINES.

Muscular Dystrophy Association