In line with including the patients–members of MDA Hellas in the production process, we participated in the EQUAL II Programme, a major endeavour funded by the EQUAL Community Initiative.
The title of the programme was ‘Enhancement of the Capabilities of Individuals Suffering from Neuromuscular Diseases Through the Development of a Pilot and Innovative Distance Learning Programme – ePIMENO’.
Over the two-year duration of the project, MDA Hellas collaborated with the Hellenic Pasteur Institute, the University of Patras, the Agricultural University of Athens, the Athens University of Economics and Business, and Omega and EXACT-DEYP, two companies active in IT services and education..
The objective of the project was to tackle the unemployment and inadequate vocational training for people with neuromuscular diseases. This innovative pilot programme aimed to equip them with competitive skills so they can be promoted in the labour market.
Within the framework of the project, the activities of the associated actors focussed on:
It is around these objectives that a number of individual tasks have already been launched; these are related to the nationwide recording of people suffering from neuromuscular conditions (myasthenia, muscular dystrophy, etc.), to sensitizing employers in particular, to informing the general population and to exploring issues relating to the obstacles and opportunities arising from the existing institutional and legal framework.
Finally, we have launched a large, new and multifaceted project aimed at informing and raising public awareness in regards to the rights of people with disabilities, as we consider social awareness to be of great importance.
Muscular Dystrophy Association